Suggested Links

Do you know of a program or organization that you feel would be valuable to our list? If so, please send us  a link to the website and a brief description.

 Table of Contents

Cremation

  • The Cremation Association
    • NorthAmerica
    • Founded in 1913, the Cremation Association of North America is an International organization of over 1500 members, composed of cemeterians, cremationists, funeral directors, industry suppliers and consultants. CANA members believe that cremation is preparation for Memorialization.

Disability

  • The Council on Quality and Leadership
    • National
    • Works to provide vision and leadership to human services organizations world wide. Through services, publications and public presence, establishes real connections between disabilities’ theory and practice and helps those who work with people with disabilities and people with mental illness take the important step from innovative ideas to everyday action. Provides leadership for greater world-wide inclusion and quality of life for people with disabilities.
  • Kids Together, Inc.
    • Pennsylvania
    • This site is designed to provide helpful information and resources
      to enhance the quality of life for children and adults with disabilities,
      and communities as a whole.
  • Advocacy Inc.
    • Texas
    • To advocate for, protect and advance the legal, human and service rights of people with disabilities.
  • The Arc of Greater Houston
    • Texas
    • The Arc of Greater Houston works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community.

Educational Facilitation

  • Partners Resource Network
    • Texas
    • Partners Resource Network (PRN) is a non-profit agency that operates the statewide network of federally funded Parent Training and Information Centers (PTI’s) in Texas.

Emotional/Grief Support

  • Beyond Indigo
    • Web Based
    • Beyond Indigo builds professional websites and provides interactive grief support services.
  • National Network for Child Care
    • National Resource
    • Provides an Internet source of over 1000 publications and resources related to child care. Publications are research-based and reviewed. Also an e-mail listserve – providing a way to communicate nationally and internationally with others who care about children and child care, support and assistance from experts in child care and child development, and newsletters issued four times a year for family child care, center-based care, and school-age child care.
  • Memorials Online
    • Web Based
    • Memorials Online is a funeral home web site portal dedicated to providing world-wide access to permanently posted obituary listings, death announcements and memorial tribute web pages.
  • M.I.S.S. Foundation
    • International Resource
    • The MISS Foundation is a 501 (c) 3, volunteer based organization committed to providing crisis support and long term aid to families after the death of a child from any cause. MISS also participates in legislative and advocacy issues, community engagement and volunteerism, and culturally competent, multidisciplinary, education opportunities
  • Open to Hope
  • Open to Hope is a social networking website whose mission it is to support those who have lost a loved one and move into hope and healing. There is a special section for grieving the loss of a child.
  • AARP
    • National Resource
    • Family, home, and legal resources regarding grief support
  • Alive Alone
    • National Resource
    • Alive Alone is a non-profit organization that publishes a bimonthly newsletter for bereaved parents now childless and networks parents with no surviving children.
  • American Hospice Foundation
    • Web Based
    • Articles, workshops, and links aimed at helping educators and parents provide grief support for students
  • BabySteps
    • Toronto, Canada
    • The BabySteps Children’s Fund is a not for profit organization dedicated to raising funds for research into childhood illnesses and their treatments. Babystepsgiftshop.com has an exclusive line of gifts for children and adults. Proceeds from these items are donated to the Hospital for Sick Children, Toronto, Canada.
  • Bereavement Publications, Inc.
    • National Resource
    • Hope and Healing for the Body, Mind, and Spirit (formerly known as Bereavement Magazine) is a support group in print offering articles, stories, poems, and resources for the bereaved by grief educators and presenters, facilitators and caregivers, authors and writers, and most important the bereaved the themselves.
  • Bereaved Parents of the USA
    • National Resource
    • Bereaved Parents of the USA (BP/USA) is a national non-profit self-help group that offers support, understanding, compassion and hope especially to the newly bereaved be they bereaved parents grandparents nor siblings struggling to rebuild their lives after the death of their children, grandchildren or siblings.
  • Candlelighters for Children with Cancer
    • Oregon and Southwest Washington
    • Our mission is to provide support, education and advocacy to families whose lives have been affected by childhood cancer.
  • The Compassionate Friends
    • National Resource
    • The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
  • Compassion Books
    • Web Based
    • More than 400 books, videos, and audios to help children and adults through serious illness, death and dying, grief, bereavement, and losses of all kinds, including divorce, suicide, trauma, and violence. Reviewed and selected by knowledgeable professionals.
  • Webhealing.com
    • Web Based
    • Articles, discussion boards, and links provided to aid in the grieving and healing processes
  • The Dougy Center for Grieving Children and Families
    • International Resource
    • The Dougy Center is a safe place for children, teens, young adults and families to grieve
  • Fernside
    • Ohio
    • Fernside is a non-profit organization offering support and advocacy to grieving families who have experienced a death. As the 2nd center in the nation, Fernside offers peer support for grieving children, teens and adults. Fernside works to increase community awareness of grief issues through community outreach.
  • http://griefnet.org/
    • Web Based
    • GriefNet.org is an Internet community of persons dealing with grief, death, and major loss.
  • Grief Recovery
    • United States and Canada
    • Provides Grief Recovery certification programs to those wishing to provide grief support to a community.
  • Griefsong
    • Web Based
    • Paul Alexander’s musical resources offers a collection of songs that bring heartfelt acknowledgment, comfort and enriched meaning to the bereaved and those who travel the path with them.
  • Healing Hearts for Bereaved Parents
    • Web Based
    • HEALING HEARTS for Bereaved Parents is a self-help non-profit organization of bereaved parents dedicated to supporting and serving other bereaved parents and their families whose child(ren) have died no matter what the age, cause or circumstance of the death(s) by providing understanding, friendship and most of all hope.
  • EriChad Grief Support
    • Web Based
    • Kidsaid is a safe place for kids to help each other deal with grief and loss. It’s a place to deal with feelings in our e-mail support group, to share and view artwork and stories, and for parents and kids to ask questions and find answers.
  • http://www.erichad.com/
    • Web Based
    • Grieving the loss of a child is one of life’s most difficult experiences. You may think you’ll never survive such pain. EriChad can’t take away your pain, but we hope to validate it, hold your hand, and help you find life’s rainbow.
  • EriChad Grief Support
    • National Resource
    • The National Self-Help Clearinghouse is a not-for-profit organization that was founded in 1976 to facilitate access to self-help groups and increase the awareness of the importance of mutual support.
  • Kara Grief Support and Education
    • California Bay Area
    • Kara is a nonprofit organization serving the San Francisco Bay Area since 1976. Our services are provided primarily by volunteers who have experience in healing from personal loss. They are trained to accompany others on their journey through a life-threatening illness and/or bereavement. There is no charge for Kara’s services. We are supported primarily by tax-deductible donations from individuals, corporations and foundations.
  • Proposed Agencies To contact for Info Packs/Join group:
    • Inland Hospice Association
      233 W. Harrison Ave., Claremont, California 91711
      p: (909) 399-3289 f: (909) 626-4369
    • Kaiser Permanente Hospice
      12200 Bellflower Blvd, Downey, California 90242
      p: (562) 622-4317 f: (562) 622-4146
    • Willmar Center for Bereaved Children
      PO Box 1374, Sonoma, California 95476
      p: (707) 935-1946 f: (707) 935-1770
    • Community Hospice Inc.*
      601 McHenry Ave,Modesto, California 95350 ,
      p: (209) 577-0615 f: (209) 577-0738,
    • After School Counseling Services
      1515 Floribunda Ave Ste 305,Burlingame, California 94010
      p: (650) 558-1015 f: (650) 558-1015
    • Footsteps at Saint Agnes Medical Center
      1303 E Herndon, Fresno, California 93720,
      p: (559) 450-5600,
    • Childrens Bereavement Art Group
      Attn: Peggy Gulshen, 2800 L St Ste 400, Sacramento, California 95816,
      p: (916) 454-6555, f: (916) 454-6526
    • Hospice of the Conejo
       80 E. Hillcrest #204, Thousand Oaks, California 91360
      p: (805) 495-2145, f: (805) 495-3092
    • Hospice of Petaluma / Children and Teen Program
       416 Payran Street, Petaluma, California 94952,
      p: (707) 778-6242, f: (707) 778-0144
    • Kaiser Hospice
      2025 Morse Avenue, Sacramento, California 95825,
      p: (916) 486-5300 f: (916) 486-5301
    • Hospice of Ukiah Childrens Program
      PO Box 914, Ukiah, California 95482,
      p: (707) 462-4038
    • Hope Hospice
       6500 Dublin Blvd Ste 100, Dublin, California 94568,
      p: (925) 829-8770 f: (925) 829-0868
    • Griefbusters of Amador
      Hospice of Amador, PO Box 595, Jackson, California 95642 
      p: (209) 223-5500, f: (209) 223-4964
    • Wings of Hope, Hospice Services of Lake County
      1717 S Main St, Lakeport, California 95453,
      p: (707) 263-6222
    • Camp Good Grief-Loma Linda University
      11234 Anderson St. Room 1801, Loma Linda, California 92354
      p: (909) 558-4073 f: (909) 558-0211
    • Camarillo Hospice
      400 Rosewood Ave., Camarillo, California 93010
      p: (805) 389-6870 f: (805) 389-0296
    • Contra Costa Crisis Center
       PO Box 3364, Walnut Creek, California 94598,
      p: (925) 939-1916 p: (925) 944-0645 24hr line, f: (925) 939-1933
    • Hospice of Napa Valley Inc.
      414 S. Jefferson St., Napa, California 94559 ,
      p: (707) 258-9080 f: (707) 258-9088,
    • Grief Recovery Institute
      PO Box 6061-382, Sherman Oaks, California 91413
      p: (818) 907-9600 f: (818) 907-9329
    • Dawns Light Center for Children and Adults in Grief
       591 S Washington St Ste #B, Sonora, California 95370,
      p: (209) 532-9001, p: (209) 768-9139 f: (209) 532-9002
    • Hospice of San Luis Opispo County Inc.
      1304 Pacific St, San Luis Opisbo, California 93401,
      p: (805) 544-2266, f: (805) 544-6573
    • Circle of Care
       2540 Charleston Street Oakland, California 94602
      p: (510) 531-7551 x195, f: (510) 531-3657
    • Josies Place for Bereaved Youth and Families
       3288 21st St #139, San Francisco, California 94110
      p: (415) 513-6343 
    • Sutter North Hospice
       824 4th St. Marysville, California 95901
      p: (530) 749-3460 p: (530) 400-9081 f: (530) 749-3123
    • Hinds Hospice Center for Grief and Loss
       1616 W. Shaw Ste B-6, Fresno, California 93711
      p: (559) 248-8579 f: (559) 226-1028
    • Hospice of Humboldt Bereavement Services
      2010 Myrtle Ave. Eureka, California 95501
      p: (707) 445-8443
  • The Shiva Foundation
    • National Resource
    • The Shiva Foundation is a not-for-profit, non-sectarian organization committed to developing resources and offering support in the grieving process. These programs are offered to individuals, families and communities.
  • The International Center for Attitudinal Healing
    • International Resource
    • The International Center for Attitudinal Healing helps people support one another to overcome the conflict, fear, and feelings of isolation that can accompany a life crisis, and encourages a choice for peace of mind.
  • American Counseling Association
    • Mainly the United States, but also Europe and Latin America
    • The American Counseling Association is a not-for-profit, professional and educational organization that is dedicated to the growth and enhancement of the counseling profession.
  • American Family Therapy Academy
    • National Resource
    • Founded in 1977, the American Family Therapy Academy is a non-profit organization of leading family therapy teachers, clinicians, program directors and policy makers, researchers, and social scientists, dedicated to advancing systemic thinking and practices for families in their social context.
  • Coping Magazine
    • International Resource
    • A magazine aimed at helping patients cope with allergies and asthma or cancer
  • Find-A-Therapist
    • International Resource
    • Find a Therapist, Inc. is the leading Web based provider of services for mental health professionals and their clients. Since our launch on the Web in 1997, we have been offering a solution to the problem of connecting people to the right therapist at the right time.
  • Cancer Hope Network
    • National Resource
    • At Cancer Cancer Hope Network, we provide free, confidential, one-on-one support to people with cancer and their families. We match patients with trained volunteers who have themselves undergone a similar experience. And we provide support and hope, to help patients and families look beyond the diagnosis, cope with treatment, and start living life to its fullest once again.
  • CanCare
    • Texas
    • CanCare of Houston, Inc. is an interfaith cancer support network that offers free, one-on-one, long-term emotional support to cancer patients and their families.
  • 3 “A” Bereavement Foundation
    • Houston, Texas Metropolitan Area
    • 3 “A” Bereavement Foundation (3ABF) is a faith-based nonprofit organization, established in 1997 to eliminate the feelings of despair and hopelessness experienced by indigent and low-income bereaved families who have limited or no means to bury their loved ones.
  • Bo’s Place
    • Houston, Texas
    • Bo’s Place offers programs and services to help grieving children and families through support groups, community training and our information and referral service.
  • American Cancer Society
    • National Resource
    • Talking about cancer isn’t easy. And, there are different considerations when you’re talking to family or friends, doctors, insurance and financial companies, and your employer. Get tips on taking this important step and find communities to discuss issues you have along the way.

    • Emotional/Grief Support – Spiritual

    • Angels of Light Reiki
      • Serving all Central CA Counties
      • Offering alternative health care that works well with and may enhance traditional medical treatments. Reiki is a gentle, safe and natural method that works on an energy level to reduce pain, relieve stress and anxiety allowing the immune system to work at optimal levels. Treatments consist of a gentle laying-on of hands and can be provided at my studio, in the hospital, or in the privacy of your own home.
      • We also offer Family Reiki Life Threatening Conditions classes (LTC). A well-being program where a parent/caregiver and the child learn Reiki and other fun-filled, simple, self-care techniques as a team. The use of these techniques helps to make hospital and doctors visits more relaxed. Private or group training is available at home or hospital.
      • Please visit the website for more information regarding treatments or training.
      • www.AngelsOfLightReiki.com
    • Lifeline Chaplaincy
      • Area
      • Description
    • The Grief Resource Center
      • Web-Based
      • The Grief Resource Center is dedicated to providing a Christian-based community resource center that offers understanding, promotes healing and provides practical assistance to children and adults in all aspects of the grieving process.

    End of Life – Advocacy

    • California Hospice and Palliative Care Association
      • California and Nevada
      • The California Hospice and Palliative Care Association advocates for those facing life-threatening illnesses. We provide technical resources to our members, monitor legislative and regulatory activities, and work closely with other organizations that share an interest in end of life care. We serve both California and Nevada.
    • Caring Connections
      • National Resource
      • The California Hospice and Palliative Care Association advocates for those facing life-threatening illnesses. We provide technical resources to our members, monitor legislative and regulatory activities, and work closely with other organizations that share an interest in end of life care. We serve both California and Nevada.
    • Children’s Hospice International
      • International Resource
      • CHI recognizes that there are unique circumstances involved in the care of children with life-threatening conditions and their families, which differ significantly from those of adult patients. The concept embraces all aspects and phases of treatment counseling from time of diagnosis of the patient, with hope for cure, through bereavement of family members if cure is not attained.
    • Children's Hospital of Pittsburgh
      • National Resource
      • Renowned for its outstanding clinical services, research programs and medical education, Children's Hospital of Pittsburgh of UPMC has helped establish the standards of excellence in pediatric care. From Ambulatory Care to Transplantation and Cardiac Care, talented and committed pediatric experts care for infants, children and adolescents who make more than 1,000,000 visits to Children's, its many neighborhood locations, and Children's Community Pediatrics practices each year.
    • Hospice Education Institute
      • National Resource
      • The Institute is an independent, not-for-profit organization, serving members of the public and health care professionals with information and education about the many facets of caring for the dying and the bereaved.
    • Hospice Foundation of America
      • National Resource
      • Hospice Foundation of America provides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the American health care system and the role of hospice within it.
    • National Association for the Terminally Ill
      • National Resource
      • NATI is a not for profit organization and depends on private funding to assist those in need of our services … Donations are used to assist terminally ill individuals and their families cope with the financial strains brought on by the illness.
    • National Hospice and Palliative Care Organization
      • National Resource
      • An organization aimed at leading and mobilizing social change for improved care at the end of life.
    • Texas Partnership fpr End-of-Life Care
      • Texas
      • A partnership aimed at trying to improve End-of-Life Care for people of all cultures and communities in Texas

    End of Life – Care Providers

    • Houston Hospice
      • Houston, TX.
      • Houston Hospice cares for the terminally ill and their families in many ways. To better serve children, the Hospice initiated The Butterfly Program, providing special services to children
    • Hospice Care Team
      • Texas
      • Hospice Care Team, Inc. is a not-for-profit hospice that provides help, hope and comfort to those facing a life-limiting illness.

    End of Life – Comprehensive

    • Brave Kids
      • National Resource
      • You’ll find thousands of resources for children with special needs, plus local resources in these areas: San Francisco Bay Area, Los Angeles and Orange county, DC/Baltimore, Seattle, Memphis, Pensacola, Fort Lauderdale, Orlando, Miami, Palm Beach, Ft. Myers, Naples, Jacksonville and the Tampa/St. Petersburg Bay Area.
    • Lucile Packard Children’s Hospital at Stanford
      • Web Resource
      • Written advice articles regarding the care of a terminally ill child.
    • ITVS
      • National/Web Resource
      • A .pdf containing facts about end of life and bereavement care as well as a list of national resources.
    • Asociación para Padres: Red de Apoyo para Padres de Niños con Enfermedades Serios
      • Web Based
      • Queremos que este sitio le sea un refugio (aunque electrónico), donde pueda encontrar la información que necesite para navegar este camino tan duro. Queremos también que usted sienta en nosotros el compañerismo de personas que totalmente comprenden esta experiencia.

    End of Life – Providers

    Ethnic Health Care – Asian

    • Asian American Health Coalition
      • Houston, TX.
      • The Asian American Health Coalition (AAHC) of the Greater Houston Area is a non-profit organization dedicated to improving the health of all Asian Americans in Houston by increasing access to health care and through population-specific health promotion and health education projects.
    • Asian American Family Services
      • Texas
      • AAFS is dedicated to serving the mental health needs of the Asian American community in the greater Houston are by providing bilingual and bicultural counseling and support services.

    Ethnic Health Care – Jewish

    • Chabad at Texas Medical Centers
      • Texas
      • Comprising multiple organizations and programs. Chabad Lubavitch of Texas provides the education and means to promote Jewish awareness, knowledge and practice through outreach, education and social services ensuring Jewish continuity.

    Ethnic Health Care – Latino

     

    • Community Family Center
      • Houston, TX.
      • Community Family Centers (formerly Chicano Family Center) furthers its vision to strengthen families and enrich lives by offering a wide range of services to Houston’s East End. CFC believes that through education and intensive intervention, families can transcend their circumstances and become self sufficient acquiring the necessary skills to perform in today’s society.
    • National Alliance for Hispanic Health
      • National Resource
      • Since 1973 we have grown from a small coalition of visionary mental health providers to a large, dynamic, and strong group of organizations and individuals. Our constituents are our members, the consumers served by our members, and the greater society that benefits from the health and well being of Hispanics.

    Family – Caregiving

    • National Family Caregivers Association
      • National Resource
      • The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to address the common needs and concerns of all family caregivers.
    • The Love Letters Foundation
      • Love Letters
      • Love Letters works by matching a kind adult to a seriously ill or traumatized child as a pen pal. We also offer the opportunity to have the child feature on our website so that they receive a range of cheerful letters and greetings from visitors to our site. There is no cost for our help and we help Kiwi kids with all kinds of serious illnesses. We know personally what a difference the help can make.

    Financial Assistance

    • Association of Maternal and Child Health Programs
      • National Resource
      • The Association of Maternal and Child Health Programs is an important resource and advocate for quality health care for women, children and families. For over 70 years, we’ve worked to protect the health and well-being of all families, especially those who are low-income and underserved.
    • America’s Health Insurance Plans
      • National Resource
      • AHIP is the national association representing nearly 1,300 member companies providing health insurance coverage to more than 200 million Americans. Our member companies offer medical expense insurance, long-term care insurance, disability income insurance, dental insurance, supplemental insurance, stop-loss insurance and reinsurance to consumers, employers, and public purchasers.
    • Blue Cross Blue Sheild
      • National Resource
      • The Blue Cross and Blue Shield Association (BCBSA) is a national federation of 39 independent, community-based and locally operated Blue Cross and Blue Shield companies. For more than 70 years, the 39 Blue Cross and Blue Shield companies have provided millions of families with top-quality, affordable health insurance.
    • The Cancer Cure Foundation
      • National Resource
      • A non-profit organization providing information on alternative/integrative therapies, including referrals, since 1976. This is a short list of resources for help in finding alternative health insurance or financial assistance.
    • Candlelighters Childhood Cancer Foundation
      • National Resource
      • Childhood Cancer Foundation is a primary provider of essential programs and services required by families of children with cancer.
    • Centers for Medicare and Medicaid Services
      • National Resource
      • Centers for Medicare and Medicaid Services provides information regarding the attainability of Medicare and Medicaid Services in the U.S.
    • http://www.cerner.com/firsthand/
      • International Resource
      • First Hand Foundation is a nonprofit organization that helps children with health-related needs when insurance and other financial resources have been exhausted. Our mission is to directly impact the health status of a young life.
    • Disabled Children’s Relief Fund
      • National Resource
      • Disabled Children’s Relief Fund (DCRF), a non-profit 501(c)(3) organization, provides disabled children with assistance to obtain wheelchairs, orthopedic braces, walkers, lifts, hearing aids, eyeglasses, medical equipment, physical therapy, and surgery. Blind, Deaf, Amputees, and children with Cerebral Palsy, Muscular Dystrophy, Spastic Quadriplegia, Encephalitis, Rheumatoid Arthritis, Spina Bifida, Down’s Syndrome, and other disabilities receive assistance. DCRF focuses special attention on helping children throughout the U.S. that do not have adequate health insurance, especially the physically challenged. In some cases, DCRF may be the last resort
    • The Children’s Leukemia Reseach Association
      • National Resource
      • The Children’s Leukemia Research Association is able to fund promising research which is bringing us closer to a cure. We also provide patient aid to those people in need, both children and adults throughout the U.S., to lessen the burden on their families in meeting expenses incurred during treatment of this devastating disease.
    • The National Children’s Cancer Society
      • National Resource
      • Welcome to The National Children’s Cancer Society. Our nonprofit organization, based in St. Louis, is dedicated to improving the quality of life for children with cancer and their families. During their time of crisis, we provide direct financial aid, in-kind assistance, advocacy, support and education.
    • http://www.catholiccharitiesusa.org/
      • National Resource
      • Catholic Charities USA is the membership association of one of the nation’s largest social service networks. Catholic Charities agencies and institutions nationwide provide vital social services to people in need, regardless of their religious, social, or economic backgrounds. Catholic Charities USA supports and enhances the work of its membership by providing networking opportunities, national advocacy and media efforts, program development, training and technical assistance, and financial support.
    • The Knights of Columbus
      • North American Resource
      • The Knights was formed to render financial aid to members and their families. Mutual aid and assistance are offered to sick, disabled and needy members and their families.
    • Ruritan National
      • National Resource
      • Ruritan’s purpose is to create a better understanding among people and through volunteer community service, make America’s communities better places in which to live and work. Many clubs provide and supervise community recreational centers, sponsor Little League and other athletic programs, involve themselves in anti-litter campaigns, help the sick and needy, and perform a wide range of services to help their communities.
    • Salvation Army
      • International Resource
      • In this new century, The Salvation Army is serving more people in the USA than ever before. We are already seeing large increases in the number of Americans seeking the basic necessities of life – food, shelter, and warmth.
    • St. Jude Children’s Research Hospital
      • St. Jude Children’s is located in Tennessee
      • All patients accepted for treatment at St. Jude are treated without regard to the family’s ability to pay. St. Jude covers all costs of treatment at St. Jude beyond those reimbursed by third-party insurers, and total costs at St. Jude when no insurance is available. St. Jude also provides assistance with transportation costs and local living expenses during treatments
    • Leukemia & Lymphoma Society
      • National Resource
      • Patients can call on volunteers for support to assist them in managing the maze of health insurance claims, keeping organized records and filing appeals if needed. Many people will come forward when a person is diagnosed and ask, “Is there anything I can do to help?” There are many tedious yet important tasks in keeping health insurance claims in order. Passing them off to a trusted relative or friend can reduce an enormous burden for a patient.
    • FinAid!
      • National Resource
      • A guide to obtaining financial aid for schooling.
    • Children’s Cancer Association
      • National Resource
      • Along with its ever-broadening national scope, CCA remains committed to funding vital programs right here at home, serving more than 13,000 local children and families throughout the year.
    • The Stephen T. Marchello Scholarship Foundation
      • Colorado, Montana, California, and Arizona
      • The Stephen T. Marchello Scholarship Foundation is a non-profit organization for the purpose of allocating post secondary scholarship monies to survivors of childhood cancer.
    • CancerCare
      • National Resource
      • An organization providing financial assistance to help cover the costs of treatment.
    • Texas Medicaid Program
      • Texas
      • The purpose of Medicaid in Texas is to improve the health of people who might otherwise go without medical care for themselves and their children.
    • Supplemental Security Income (SSI)
      • National Resource
      • Supplemental Security Income (SSI) is a Federal income supplement program funded by general tax revenues.
        It is designed to help aged, blind, and disabled people, who have little or no income and it provides cash to meet basic needs for food, clothing, and shelter.
    • Visionary Alternatives
      • National Resource
      • Visionary Alternatives, Inc. is here to teach children and their families about how we can live in a way that sustains the environment and preserves health. Visionary Alternatives, Inc. will make payment directly to a treatment provider when the review of the patients medical condition and financial needs have been determined to meet all of our requirements.

    Financial Assistance – Emergency

    • Traveler’s Aid International
      • International Resource
      • Traveler’s Aid International’s misson is to advance and support a network of human service provider organizations committed to assisting individuals and families who are in transition, or crisis, and are disconnected from their support systems.

    Financial Information

    • Internal Revenue Service (IRS)
      • National Resource
      • This site helps to find out what tax exemptions are available for taxpayers.
    • New England Serve
      • New England
      • New England SERVE works on many diverse projects with one common goal: to improve the quality of health systems for CSHCN and their families.

    Funeral/Memorial Planning

    • http://www.acor.org/ped-onc/
      • Web Based
      • This site contains resources and information for parents of children with cancer by parents of children with cancer.
    • NY State Department of Health: A Consumer’s Guide To Arranging a Funeral
      • NY, but a funeral planning guide is provided
      • A guide to planning a loved one’s funeral.
    • The Funeral Directory
      • Web Based
      • This site provides resources regarding the administration of funeral services.
    • Funeral Net
      • National Resource, but provides International funeral home searching resources
      • This site will help you find a funeral home, obituary, cemetery, or your ancestry.
    • Funeralplan.com
      • National/Web Based Resource
      • Funeralplan.com is a free consumer information and education resource on funeral planning, financing funerals, funeral products and services, and grief support and counseling. You can also post free on line obituaries and find out how to help your child handle grief.
    • Federal Trade Commission (FTC)
      • National Resource
      • A consumer’s guide to planning or preparing for a funeral
    • National Funeral Director’s Association
      • National Resource
      • The National Funeral Directors Association (NFDA) is the worldwide resource and advocate across all facets of funeral service dedicated to high ethical standards and to helping members provide meaningful service to families.
    • Association of Cancer On line Resources
      • Web Based
      • ACOR offers access to 159 mailing lists that provide support, information, and community to everyone affected by cancer and related disorders.

    General Support

    • GrowthHouse.org
      • International Resource
      • Growth House, Inc., provides this award-winning portal as your international gateway to resources for life-threatening illness and end of life care. Our primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration. Our search engine gives you access to the Internet’s most comprehensive collection of reviewed resources for end-of-life care.
    • HospiceNet
      • Web Based
      • Information for patients, caregivers, children and the bereaved as well as services
    • Last Acts (You will be redirected to The Robert Wood Johnson Foundation website. Last Act articles are archived there.)
      • Web Based
      • Last Acts created a wealth of useful Web content—for health care consumers, health-care practitioners, policy-makers and employers. The articles are presented primarily for their historical interest, to illustrate the depth of the Foundation’s long commitment to quality end-of-life care. Many of the articles remain current, but readers are advised that some of the information could be dated.
    • CancerCare
      • Many Web Based services, but other services are provided on the East Coast.
      • CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs – including counseling, education, financial assistance and practical help – are provided by trained oncology social workers and are completely free of charge.
    • Family Voices
      • National Resource
      • Family Voices is a national grassroots network of families and friends which advocates for health care services and provides information for families with children and youth with special health care needs.
    • Brave Kids
      • National Resource
      • You’ll find thousands of resources for children with special needs, plus local resources in these areas: San Francisco Bay Area, Los Angeles and Orange county, DC/Baltimore, Seattle, Memphis, Pensacola, Fort Lauderdale, Orlando, Miami, Palm Beach, Ft. Myers, Naples, Jacksonville and the Tampa/St. Petersburg Bay Area. More cities to come!
    • American Cancer Society
      • National Resource
      • General articles and resources for the cancer patient, caregiver, or anyone else looking for information on the prevention of cancer or support of research.
    • Father’s Network
      • Web Based, Located in Washington State
      • The Father’s Network provides current information and resources to assist all families and care providers involved in the lives of children with special needs. This information is up-to-date, helpful, and designed to promote the resilience of all family members.
    • The Never-Ending Squirrel Tale
      • National Resource
      • The Never-Ending Squirrel Tale Website contains articles regarding practical tips and encouragement for the parents of kids with cancer. It’s written by other Moms and Dads in your shoes—the ones that have already started the journey.
    • Friends of Karen
      • New York Metropolitan Area
      • Dedicated to providing emotional, financial and advocacy support to children with life-threatening illnesses and their families. We have served children throughout the New York metropolitan area for more than twenty-five years.
    • National Alliance For Hispanic Health
      • National Resource
      • Resources and a community primarily for Hispanics who are healthy or who want to become healthy
    • Leukemia & Lymphoma Society
      • National Resource
      • The Leukemia & Lymphoma Society is the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. The Society’s mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families.
    • National Cancer Survivor’s Day
      • International Resource
      • National Cancer Survivors Day is held annually in hundreds of communities throughout the world on the first Sunday in June. It is a symbolic event to demonstrate that life after a cancer diagnosis can be a reality.
    • The Wellness Community
      • National Resource
      • he Wellness Community is an international non-profit organization dedicated to providing free support, education and hope to people with cancer and their loved ones.
    • Family Services of Greater Houston
      • Houston Area
      • Family Services of Greater Houston’s (Family Services) mission is to strengthen individuals, families and communities through the provision of preventive, supportive and therapeutic services.
    • Livestrong – The Lance Armstrong Foundation
      • National Resource
      • We offer information and services to help cancer survivors live life on their own terms. We take aim at the gaps between what is known and what is done in the cancer fight. We engage people to make cancer a national priority.
    • Planet Cancer
      • Web Based
      • Planet Cancer is a community of young adults with cancer. We’re glad you’re here. (Well, not really. But you know what we mean.)
    • Concurrent Care for Children: Implementation Toolkit
      • Inspired by the vision of the late Dr. Carlos Gomez, one of the founders of the District of Columbia Pediatric Palliative Care Collaboration, the Concurrent Care for Children: Implementation Toolkit is available online as a free resource on the NHPCO website.

    General Support – Adolescents

    • http://www.canteen.com/
      • Area
      • Desc
    • The Wellness Community-Group Loop
      • Web Based
      • This is a list of resources for teens who are dealing with cancer. They range from sites aimed at helping teens deal with the social limitations of having cancer, or the possibility of infertility, to sites providing scholarship opportunities
    • Mind & Body Focused
      • Web Based
      • The mind and body connection can be confusing for some. Understanding mental and physical health and the balance between mind and body can be helpful. This site is for those looking for information, forums and news on the mind and body.

    General Support – Children

    • Cancer Kids
      • Web Based
      • Cancer Kids is a web-based organization which began in 1997 with one simple goal: to help children with cancer tell their stories to the world.
    • Children’s Medical Center
      • Texas
      • In 2008 Children’s Medical Center will open the doors of its new hospital, Children’s Medical Center Legacy. With the construction of this new hospital, Children’s creates the opportunity to better serve the families of the region’s northern counties with access to a full-scale pediatric medical center close to home.
    • Kid’s Hospital Network-Bearable Times Kids & Teens Club
      • Web Based
      • The Kids’ Hospital Network (TKHN) is an organization created for children that are ill or have challenges. TKHN is a caring group with an interest of networking with others to fulfill common goals.
    • KidsCope
      • Web Based (sells products internationally)
      • KIDSCOPE’s mission is to help children and families understand the effects of cancer or chemotherapy on a loved one, to provide suggestions for coping, and to develop innovative programs and materials that communicate a message of hope to diverse families coping with this crisis.
    • The Sunshine Kids
      • National Resource
      • The Sunshine Kids is a non-profit organization dedicated to children with cancer. Established in 1982, we are committed to providing positive group activities and emotional support for young cancer patients. The Sunshine Kids provides a variety of programs and events, free of charge, for kids who are receiving cancer treatments in hospitals across North America.
    • Family to Family Network
      • Web Based
      • The Mission of Family to Family Network is to help families of children with disabilities by providing information, training, referral and support.
    • Candlelighters Childhood Cancer Family Alliance
      • Houston, Texas
      • The mission of Candlelighters is to provide emotional, educational, and practical support to children with cancer and their families. In addition, Candlelighters desires to promote childhood cancer awareness, and the need for childhood cancer education and research in the Houston community.
    • DePelchin Children’s Center
      • Texas
      • Recognizing that a child’s needs are best met in a family environment, DePelchin Children’s Center strengthens the lives of children and their families in our community by providing a continuum of services to prevent and resolve social and emotional crisis.
    • Partnering for Children
      • National
      • Partnering for Children is a national awareness campaign to help get the word out about compassionate healthcare for children with life-threatening conditions and their families.

    General Support – Family

    • Texas Parent to Parent
      • Texas
      • Texas Parent to Parent is a nonprofit organization that was created by parents for families of children with disabilities, chronic illness and other special needs throughout the state of Texas.We offer families a place to access information and resources, a one-on-one match with a trained Supporting Parent Volunteer, someone to call or email when you just need to hear a friendly voice, a bit of encouragement, or help figuring out the next step in your journey of raising a child with a disability or special need.

    General Support – Survivors

    • Outlook – Life Beyond Childhood Cancer
      • National Resource
      • The Outlook Web Site was developed in order to provide an innovative and unique resource that addresses the issues of childhood cancer survivors, provides information and support to families and professionals and to build a bridge of support between current patients and survivors.
    • Memorial Sloan-Kettering Cancer Center
      • New York, New York
      • Memorial Sloan-Kettering offers care that is unequaled in depth of experience and skill in the treatment of cancer affecting children, teenagers, and young adults. Pediatric oncologists, surgeons, radiation oncologists, pathologists, and other sub-specialists work together to maximize each patient’s chance of a cure.
    • Cancervive
      • Los Angeles
      • Cancervive is an organization dedicated to providing support, public education, and advocacy to those who have experienced this disease. Our mission is to assist survivors and help them reclaim their lives after cancer.
    • National Cancer Institute
      • Web Based
      • This site contains a pamphlet aimed at helping one deal with the changes one faces in his or her life during and after a cancer diagnosis.

    General Support/Advocacy

    • National Children’s Cancer Society
      • National Resource
      • Our nonprofit organization, based in St. Louis, is dedicated to improving the quality of life for children with cancer and their families. During their time of crisis, we provide direct financial aid, in-kind assistance, advocacy, support and education.

    Hats and Hairpieces

    • Hats Off for Cancer
      • International Resource
      • Hats Off For Cancer collects and donates hats of all kinds to the amazing children who lose their hair due to cancer treatments.
    • Heavenly Hats
      • International Resource
      • The Heavenly Hats Foundation(TM )collects and distributes brand new hats of all kinds to those heroes of all ages who lose their hair due to the treatment of cancer or the many other medical conditions which may cause hair loss. The Heavenly Hats Foundation (TM) was founded by teenager Anthony Leanna when he was only 10 years old.
    • Locks of Love
      • National Resource
      • Our mission is to return a sense of self, confidence and normalcy to children suffering from hair loss by utilizing donated ponytails to provide the highest quality hair prosthetics to financially disadvantaged children.
    • Wigs for Kids
      • International Resource
      • Wigs For Kids is a non profit organization that provides hairpieces to children suffering from hair loss as a result of medical treatments, health conditions, or burn accidents.

    Home Care

    • American Association for Homecare
      • National Resource
      • The American Association for Homecare is the voice for homecare in Washington. AAHomecare lobbies Congress, the White House, the Centers for Medicare and Medicaid Services (CMS), and other agencies to strengthen federal policy for the millions of Americans who require medical care in their homes.

    Home Care – General

    • National Association for HomeCare and Hospice
      • National Resource
      • The National Association for Home Care & Hospice is the nation’s largest trade association representing the interests and concerns of home care agencies, hospices, and home care aide organizations.
    • Visiting Nurse Associations of America
      • National Resource
      • In this new century, not-for-profit VNAs continue their unparalleled selfless tradition by offering quality of life and independence to all Americans through comprehensive home health care. Today, guided by their charitable missions, VNAs care for nearly 4 million people annually.

    Home Care – Palliative

    • American Academy of Hospice and Pallaitive Medicine
      • National Resource
      • The American Academy of Hospice and Palliative Medicine is an academy/institution that provides hospice centered education opportunities for health care providers.
    • Dr. Bob's Place
      • Baltimore/Washington area.
      • Dr. Bob’s Place provides specialized pediatric palliative care for children living with a life-threatening illness and support for their families throughout the greater Baltimore/Washington area.

    Home Care – Quality of Life

    Insurance Assistance

    • Health Insurance Consumer Information-News You Can Use
      • Web Based
      • News You Can Use from healthinsuranceinfo.net is an on-line newsletter about protections consumers have and [may] lack as they seek to buy and keep private health insurance.
    • Insure Kids Now!
      • National Resource
      • Insure Kids Now! is a site that provides the resources and capabilities needed to find out if a child is eligible for free or low cost health insurance even if the parent(s) is(are) working.
    • Gateway to Care
      • Houston, Texas
      • Gateway to Care is a 501(c)(3) collaborative comprised of 167 public and private safety net health systems, coalitions, advocacy groups and social service providers working together to assist the approximately 2.2 million medically indigent residents in the Greater Houston Area in receiving medical care at the most appropriate setting.
    • National Patient Advocate Foundation
      • National Resource
      • National Patient Advocate Foundation (NPAF) is a national, non-profit organization that is dedicated to the mission of creating avenues of patient access through improved access to, and reimbursement for, evolving therapies, therapeutic agents, and devices through policy and legislative reform at the state and federal levels. Our mission is shaped by the experiences of the patients served through our companion organization, Patient Advocate Foundation.

    Lodging

    • Ronald McDonald House Charities
      • International Resource
      • The three core programs of RMHC – the Ronald McDonald House, Ronald McDonald Family Room and Ronald McDonald Care Mobile – are focused on helping families in need. Our cornerstone Ronald McDonald House program began in 1974 based on a simple idea: Provide a “home away from home” for families of seriously ill children receiving treatment at nearby hospitals. Since that time, more than 10 million families around the world have benefited from the comfort provided by a Ronald McDonald House.
    • A Safe Stay
      • Web Based
      • A New Tool for Safety Conscious Family Travelers: ASafeStay.com Website gives parents a heads up on which accommodations offer child safety features
    • Chabad at Texas Medical Center
      • Texas
      • Aishel House provides assistance to patients and their families who come to the world renowned Texas Medical Center from all over the world.

    Medical – Alternative

    • Alternative-Cancer.net
      • Web Based
      • An alternative cancer therapy consultant who’s counseled over 1,000 people clears away the information overload fog for you. Learn exactly what you need to know to successfully treat cancer with natural therapies.
    • Angels of Light Reiki
      • Serving all Central CA Counties
      • Offering alternative health care that works well with and may enhance traditional medical treatments. Reiki is a gentle, safe and natural method that works on an energy level to reduce pain, relieve stress and anxiety allowing the immune system to work at optimal levels. Treatments consist of a gentle laying-on of hands and can be provided at my studio, in the hospital, or in the privacy of your own home.
      • We also offer Family Reiki Life Threatening Conditions classes (LTC). A well-being program where a parent/caregiver and the child learn Reiki and other fun-filled, simple, self-care techniques as a team. The use of these techniques helps to make hospital and doctors visits more relaxed. Private or group training is available at home or hospital.
      • Please visit the website for more information regarding treatments or training.
      • www.AngelsOfLightReiki.com
    • MD Anderson Cancer Center
      • Web Based
      • M. D. Anderson Cancer Center’s Complementary/Integrative Medicine Education Resources (CIMER) Web site is offered to help patients and physicians decide how best to integrate such therapies into their care, as described in our mission statement
    • People Against Cancer
      • Internationally Web Based
      • Through our Alternative Therapy Program we find our members the best cancer treatment. We also publish a Newsletter, Options: Revolutionary Ideas on The War on Cancer.

    Medical – Cancer – Advocacy

    • Intercultural Cancer Council
      • National Resource
      • The ICC Cancer Fact Sheets were created because medically underserved populations, such as racial and ethnic minorities, experience disproportionately greater suffering and compromised health from cancer compared to the U.S. population as a whole.
    • Jacob’s Heart Children’s Cancer Association
      • Monterey Bay Area
      • We are a local, one-of-kind grassroots organization. Our support services extend to families with children under 18 diagnosed with cancer within the counties of Santa Cruz, San Benito and North Monterey.
    • Children’s Cause Cancer Advocacy
      • National Resource
      • The Children’s Cause for Cancer Advocacy (CCCA) is a 501 (c) 3 non-profit organization that works as a national catalyst to stimulate drug discovery and development for childhood cancers, to expand resources for research and treatment, and to address the needs and concerns of survivors.
    • National Coalition For Cancer Survivorship
      • National Resource
      • The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country and a highly respected voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors.
    • National Cancer Institute-Complementary and Alternative Medicine in Cancer Treatment: Questions and Answers
      • Nationally Web Based
      • National Cancer Institute-Complementary and Alternative Medicine in Cancer Treatment: Questions and Answers is a web page providing information about alternative medicine possibilities.

    Medical – Cancer – Information

    Medical – Cancer – Pediatric

    Medical – Cancer – Specialty

    Medical – Cerebral Palsy

    Medical – Cystic Fibrosis

    Medical - Drugs

    Medical – Heart Disease

    Medical – Hodgkin’s Disease

    Medical – Holistic

    • American Holistic Medicine Association
    • Angels of Light Reiki
      • Serving all Central CA Counties
      • Offering alternative health care that works well with and may enhance traditional medical treatments. Reiki is a gentle, safe and natural method that works on an energy level to reduce pain, relieve stress and anxiety allowing the immune system to work at optimal levels. Treatments consist of a gentle laying-on of hands and can be provided at my studio, in the hospital, or in the privacy of your own home.
      • We also offer Family Reiki Life Threatening Conditions classes (LTC). A well-being program where a parent/caregiver and the child learn Reiki and other fun-filled, simple, self-care techniques as a team. The use of these techniques helps to make hospital and doctors visits more relaxed. Private or group training is available at home or hospital.
      • Please visit the website for more information regarding treatments or training.
      • www.AngelsOfLightReiki.com

    Medical – Information – Cancer

    Medical – Information – Critical

    Medical – Information – General

    Medical – Leukemia – Gen. Support

    Medical – Leukemia – Pediatric

    Medical – Lodging

    Medical – Muscular Dystrophy

    Medical – Neurological Oncology

    Medical – Neurology

    Medical – Osteosarcoma

    Medical – Pain Management

    Medical – Pain Management – Ped.

    Medical – Ped. Neuro. Oncology

    Medical – Pediatric – Advocacy

    Medical – Pediatric – Cancer

    See “Medical – Cancer – Pediatric”

    Medical – Pediatric – Enrichment

    Medical – Pediatric – General

    Medical – Rare Diseases

    Medical – Sickle Cell

    Medical – Specialty

    Medical – Spina Bifida

    Medical – Transplant – Bone Marrow

    Medical – Transplant – Financial Aid

    Medical – Transplant – General

    Medical – Transplant – Kidney

    Medical – Transplant – Liver

    Medical – Transplant – Pediatric

    Other

    • Angels of Light Reiki
      • Serving all Central CA Counties
      • Offering alternative health care that works well with and may enhance traditional medical treatments. Reiki is a gentle, safe and natural method that works on an energy level to reduce pain, relieve stress and anxiety allowing the immune system to work at optimal levels. Treatments consist of a gentle laying-on of hands and can be provided at my studio, in the hospital, or in the privacy of your own home.
      • We also offer Family Reiki Life Threatening Conditions classes (LTC). A well-being program where a parent/caregiver and the child learn Reiki and other fun-filled, simple, self-care techniques as a team. The use of these techniques helps to make hospital and doctors visits more relaxed. Private or group training is available at home or hospital.
      • Please visit the website for more information regarding treatments or training.
      • www.AngelsOfLightReiki.com
    • http://kidscancernetwork.org/home.html
    • KidsCom

    Other – Blankets

    Other – Musical

    Other – Musical Healing

    Other – Video Interaction

    Patient Advocacy

    Pen Pals/Networking

    Prescription Subsidy

    Retreats

    Sibling Support

    Support

    Transportation

    Wish Fulfillment